Friday, January 9, 2015

Facebook Friday

On Fridays (when I remember/have 4 minutes to myself in order to sit down at the computer) I go back through some of my Facebook posts from the week and share a few postings in an attempt to keep you relatively updated on our's my feeble attempt to compensate for being a lethargic blogger.  

The trick to surviving a 4 1/2 hour drive with multiple squibs...take along snacks that you can toss into the backseats while you continue driving. LC is the champ at catching Teddy Grahams. When it comes to mini Chips Ahoy, Geb is no slouch. And, it must be said, I'm a pretty good shot. I need to get a video of it to submit along with my resume if they're ever hiring sea lion feeders at Sea World.

    (We did a lot of holiday traveling.  Totally worth it...but totally exhausting.  And the floor of my van remains under an inch and a half of travel snacks.)

You can tell me she doesn't take after her father, but I have a wealth of evidence that proves otherwise...

 We went to a family wedding over our Christmas vacation.  It was all sorts of wonderful getting to love on people we don't have the opportunity to hug on in person often enough.

Lately, I've noticed my affinity for delivery pizza rising while my commitment to daily exercise has been crumbling at an equally swift rate. Which led to the following evening conversation:
Me: Justin, you think I'm cute?
Justin: Yes.
Me: much weight could I gain and still be cute?
Justin: 35...40 pounds?
Me: You know I was 60 pounds heavier than this with each of my last pregnancies, right?

This kid had a birthday since you've last heard from us...we caked him up.  

I'm nearly positive God is having deliberate fun at my expense.
"I think I'll make Effie really talkative with strangers. Ooooo....I know. I'll make one of her favorite topics her love for Thomas the Tank Engine's best friend.
And then...wait for it....I'll design her tongue to be unable to articulate the "r" sound."
Effie, even if you genuinely adore him and want to recruit more fan club members, "I love Percy" is not going to be an appropriate conversation starter until we get you some speech therapy.‪  #‎whywehaveanotalkingtostrangersrule‬

Teachers shouldn't accept holiday presents until after the winter break. The gifts would be a heckuva lot better.
(Squibs returned to the bliss that is typical school routine.  Thank you, merciful Lord.)

Someone is no longer allowed out of her kennel during squib bath time. 
(The bowels of hell opened up and spat out this dog.  Which is exactly why the squibs love her brains out.)
And, speaking of Mabel...

That awkward moment when Jace's progress report comes home. And you realize his goal to "appropriately respond to the commands sit down, stand, point and give me" are the same goals you have for Mabel.
And she's showing a helluva lot more progress in meeting them.
#yourekillingmebiggs, #mabelcantdotheactionstoitsybitsyspiderthough

I love the Biggs to the point of physical pain.  I can also fully acknowledge the fact that he is an academic lump.  These are not mutually exclusive truths.   And he's up from the "performed with 0% accuracy" score he received last quarter.  Way to reach for the stars, Jace.  His teachers are saints.  Saints, I tell you.

Thanks for continuing to check in on our herd...until you hear from us again...

Wednesday, December 10, 2014

Holiday Blessings

First and foremost...THANK YOU, THANK YOU for sharing about sweet Devine.  I wish I could update you on his status, but one of the best ways of keeping kids in state custody safe is keeping their information confidential.  I won't know anything more than most of you...I only know that his adoption profile is gone and I hope it means amazing things for a redheaded boy whose picture was seen nearly 6,000 times more than it might otherwise have been because of the generosity of each of you.

Thank you so much for showering the squibs with your kindness and extending it on to others as well.

You have certainly been responsible for making our holiday much more merry and bright.

Sending you the sweetest wishes for blessings this holiday season and beyond...

From Pudge, Biggie, Effbomb, YoGebbaGebba and the whole Heigele crew...

Happy Holidays!!!

Wednesday, November 19, 2014

Saying Goodbye to the Blog

It's probably been coming for awhile now.

I haven't been posting very regularly and life with four kids and a golden retriever puppy spat straight from the bowels of hell is keeping me away from my computer.

I think we still get blog visitors.

I assume we do.

But...just to test the waters a bit...I've decided to make one last bid for an incentive to hang around blogland.

So, here's the deal.

His name is Devine.  You can read more about him here.

And this kid is keeping me up nights, people.

He's seven.  Only.  Seven.  And hasn't been seven for even five months yet.

He's available for adoption.  To any state.  Because no one has ever stepped forward to say, "He's mine.  I'll take him.  He stays with me."

Every WORD of his adoption bio is true for BOTH Pudge and Biggs.

But, more importantly, LC and Jace were domestically adopted because, repeatedly during the years before I was married, I had seen...firsthand...what happens to children with Down syndrome who are brought up in foster care in our country.

It would break your heart and turn your stomach.  I guarantee it.

This kid is oozing with potential.  This kid is waiting to explode with wonder in an environment that would support the kind of consistency and emotional investment he deserves.

This kid is drop dead gorgeous, if that figures in at all.

I need a family for Devine.  I need somebody to step out of their comfort zone and say, "Kid.  I'm here to change.  your.  world."

I need a safe bed and a warm lap and a "you are so worth it" for this kid.

If you can't be Devine's hallelujah, could you please pass on his information in the hopes that a family willing to be his "yes" might see it?

December 1st.  If 100 people comment to tell me (and prove it) how you shared about Devine's status via social media, the blog stays.  If not, that's okay.  I get it.  It's probably been in the works for awhile anyhow.

And, of course, if we DO hit the hundred mark, you never know just how we may have to celebrate...

Thank you for sharing Devine's story.

Thanks for praying this kid into an amazing place with me.  You never let me down.

Saturday, October 18, 2014

Petitioning for a Princess

I've been reading some interesting commentary via social media, regarding a petition that was started to request that Disney create an animated princess character with Down syndrome.

You can read more about it here and follow a link within the article if signing the petition is something you have an interest in doing.

They'll be submitting that petition without my signature, but I certainly hold nothing against those wanting to support it.

It just doesn't feel like my fight, for a variety of reasons.

First and foremost, I'm not raising princesses at my house.  I have two daughters and I want them to be exposed to strong, inspiring women on a regular basis.  But we have the good fortune of having those women in our actual day to day lives.  Real, living...breathing...actual people.  So, I feel pretty good about LC and Effie having positive influences as they grow up, even if they never view another Disney movie again.  (Not going to happen, by the way.  Wanna watch Frozen for the 2,307th time?  Fine by me if it shuts you all up long enough for me to make a meatloaf and scrape this morning's dried oatmeal off the table in time for supper).

I'm also willing to admit I don't want to see what the common stereotypical interpretation of "a girl with Down syndrome" is going to look like.  Because I'll bet it still won't look a thing like my oldest daughter.  I've seen the dolls made to specifically resemble a child with Down syndrome.  And I don't mind telling you I haven't stumbled upon too many that didn't look like a white-skinned Al Roker in a long wig.  I feel entitled to form the opinion, since we currently have a "doll with extra chromosomes" in our toy box.  She isn't any more likely to be played with by LC than the other dolls in the pile.  If she gets picked up at all, it's because she's the only doll with shoes that can be removed to be used as cargo in the girls' wooden train cars.

Another reason I don't feel the need for a Disney princess with Down syndrome is my belief that each of my daughters can already find multiple facets of their personalities reflected in the princesses that currently exist.  There are princesses who are wildly devoted to their fathers...a princess frustrated by her inability to speak...a princess who is fearless in battle...a princess who adores her sister...a princess whose nose is always in a book...a princess who is capable of finding something to love in individuals most of society has shunned as unlovable...

If my daughters asked my advice in how to find a kindred spirit in a crowd, I'm pretty sure I wouldn't tell them to look for someone whose eyes are shaped like their own.  I'm quite certain I wouldn't tell them to seek out an individual with a nose bridge of similar design or people with hands that have the same type of creases.  I'd tell my girls to find someone who laughed at what they laughed at...who loved how they loved...whose mysterious insides were somehow made of similar stuff...whether they were looking to connect with a princess or a preschooler.

I don't think the desire to influence characteristics of an upcoming Disney character is frivolous or small.  And I wouldn't be disappointed if they did decide to feature a young lady whose tiara twinkled with the number twenty-one.  But, to be honest, if they're going to consider breaking the current mold I'd probably rather see the fiscally responsible princess.  Or the princess with a degree in a science or technology field.  A princess who wore a size 12 ballgown would be appreciated.  And I think a lot of good could come from a princess with a retainer and the complexion everyone else on the face of the earth sported from ages thirteen to twenty.

I'm not holding my breath for any of the models mentioned above to show up in our DVD player anytime soon.  And I'm okay with LC never sitting down to a cartoon movie and seeing someone dancing across the screen who shares her genetic makeup.  I've never looked up at a Disney princess and seen myself staring back, and I'm okay with her experiencing the same.  Neither LC nor Effie can ever grow up to be an animated princess...but there are so many things they are each capable of becoming.  Their happily ever afters won't involve too many talking woodland creatures (unless they're way more experimental than I was in college)...and they probably won't have their own lines of over-priced, plastic, glittery merchandise.  But I'm so grateful I get to have a front row seat to the story of both of their lives.  Because I know...whether Disney is interested in producing it or not...those girls of mine are going to put on a damned fine show.

Friday, October 17, 2014

Facebook Friday

2nd in a row...I'm as surprised as you.

Joined LC for lunch at school today. Forgot what it was like to dine with a table full of kindergarteners.
"Why does LC's sister have her hair cut like a boy's?"
"I have a grandma and an aunt and a cousin and they live in Wichita and my cousin's name is Tristan and he's five like me."
"Hey, can I ask you something?"--immediately followed by a declarative statement about themselves. x 15
"My neighbor across the street has a dog and it got sick and they took it to the vet and now it's buried in their yard."
"I'm not going to be able to make it to LC's birthday party because I'm going to Dave and Buster's and that's going to be way more fun."
"I'm wearing new shoes because I got my old ones dirty and I don't have any younger brothers or sisters just a sister who is two years older and if I turn my head then she gobbles all my food and can I have your cell phone number actually could you write it down on a piece of paper or something because I'm not really good at remembering numbers."
I'm not sure I got a chance to really make LC feel celebrated during our lunch, but I did come to a better understanding of why she might be punching her classmates.  #pleasestoptalking #kindergartenteachersshouldmakemillions

Justin on the left.  Geb on the right.

Officially freaked out to learn my uterus is a cloning machine.

On a breakfast date with the mini squibs. So far she's eaten a blue crayon, 2 sugar packets and is now singing, "I'm painting a train...I'm ready for pancakes" in the style of Buddy the Elf. #effbomb

Celebrating my boys with a quote from Hafiz.  Check out more Down Syndrome Awareness Month action over here, if you wanna...

Children can be cruel.
As humans, they certainly hold that potential. But, oh, never ever forget the capacity they have to be infinitely kind.  #godblesskindergartenboys

That's all for this one.  Catch you the next time around...

Thursday, October 9, 2014

Facebook Friday

Trying out a new feature in an attempt to update with squib news on a more regular basis.

It seems I only have time to share about our lives anymore in quips that are usually about 3 sentences long.

Hardly constitutes as a blog.

So, I'll make an attempt on Friday afternoons to go back through some of my Facebook posts from the week and share a few postings in an attempt to keep you relatively updated on our family.

It's worth a shot.

Here goes...

LC's speech therapist has been working with LC to use her iPad to be able to tell me about her day and her interactions with her friends. I'm still getting used to the idea of getting actual responses when I ask, "How was your day at school?" 
Today's conversation:
I went to speech with Ms. Lauren. 
I went to computers. I played at recess. 
I ate lunch with my friends. 
I sat by Ashlynd.
Let's wake up Jace.
Let's wake up Geb.
Let's wake up Effie.
And, as I suggested we check today's behavior calendar...
"Mom" (verbally)
I like you.
I like you.
I like you.
(Nice try, Pudge. I still checked the calendar. Let's have Ms. Lauren make an "I slipped into feral child mode at 3:00" button, shall we?)

Today I felt Jace walk up behind me and tap my hand. (Which, if you weren't aware means "Mom's Hand, I have a job for you".)
I turned around to see Jace with Mabel sitting beside him. She was holding a full bag of Cheetos in her mouth.

I may have been less than clear in explaining to Mabel what we meant by "service dog".  ‪#‎peasinapod‬‪#‎theyhavebothpeedonmycarpetthisweek‬

(We got a dog.  Intended for Jace.  Her name is Mabel.  She's four months old...and worthy of a blog entry all her own...)

This morning Jace was protesting getting on the bus. His bus driver and para are the same two he had for summer school. As we were both working to drag him into a bus seat, his para commented on how much Jace has grown since summer school.
"Yeah," I replied. "With all the other tiny kids at our house, he definitely stands out as the tank."
The bus driver quickly said, "He must be the one that takes after you."

Geb had ear surgery last week to place tubes in his ears.  I believe that makes it tube placement surgery #11 for our family.  Not that we're counting...

He decided to set himself apart by SCREAMING NON STOP for the week following the procedure.  I have no idea what the reason is.  We've been back to the doctor twice.  They assure us his ears look fine.  

So, when pharmaceuticals are not recommended, we're really left with only one option...

Wow. Effie found the ice cream treats intended for LC to share with her friends for her birthday.
Wow. She bit the top off half of them.
Wow. They were erasers.

She turns two at the end of the month.
If she makes it.
The girl is wearing me OUT.  All of the hair-pulling and language enrichment and therapy sessions and frustration I've experienced having two children who do not speak...only to learn it's been six years of bliss, people.
Sweet, silent, BLISS.

Catch ya next Friday, folks...

Wednesday, October 1, 2014